This gown will be gifted to Layla who currently going through treatment for a rare genetic disorder. This is what her family shared with us about her journey:
"This gown is being requested for my daughter Layla who is diagnosed with a rare genetic disorder from which she has had many medical and developmental challenges. One of those is her Chiari I Malformation of the back of her skull which requires yearly MRIs. This year we tried to complete the MRI without sedation because the sedation causes her so much anxiety leading up to the MRI but she was not able to stay still and was not confident enough yet to be able to do it awake. We now have her MRI scheduled for July 30 and she asks me at
Least once a day, “hey mom, what are we doing on July 30?” Because she is already
Anxious about it. I feel like having a brave gown may add some positivity and bravery to a situation that frightens her."