This gown will be gifted to seventeen-year-old Roberto who is going through treatment for epilepsy. This is what Roberto's family shared with us:
"Roberto is a 17yr old epilepsy patient whom is going through surgical evaluation to possibly improve his quality of life. He will likely have multiple procedures over the next few years.
He has dealt with epilepsy since he was 7yrs old when he was officially diagnosed but we’ve come to discover that he’s likely dealt with this entire life in some degree. In March of 2024, our neurologist ordered a different more specific type of MRI and the results from that were shocking. Roberto has a brain malformation which is sneaky and hard to see on a normal MRI. The type of malformation (PMG) he has is developed in utero and it is drug-resistant, which explains why we’ve had to change medications multiple times.
Since that discovery, we were then referred for a surgical evaluation so we can better treat or possibly eliminate Roberto’s epilepsy. We have been in and out of the hospital for over a year now and have traveled 2hrs from home to complete this evaluation.
Roberto would benefit from this care package due to him having a port for best access and because his head is frequently attached to an EEG monitor making changing non-button down shirts difficult.
Please considered sending him a care package as it would help make his admissions more manageable. In addition, receiving a care package would definitely brighten his day and place a smile on his face."